I woke up at 1.30a with my wrapped hand hurting and my thumb tingling. As much as I wanted to keep the bandages on to possibly reduce the swelling, I thought the pain meant I should unwrap my arm and hand. I slept fitfully after, with my thumb feeling strange until later in the day.
I put my sleeve and glove on this morning when I was getting dressed to try to make it a part of my daily routine as I was told " it doesn't do any good if it's not on". The sleeve still seems to pinch at my wrist, as does the glove, so I'm not sure they are the best. Pity they cost about $450
The kids and I spent the morning at the beach with some of Remie's classmates while Nick went for a bike ride. The weather was perfect and the girls stopped down to their undies to play in the water as I hadn't brought swimmer. The lovely few hours turned foul when it was time to go and Remie screamed at me (and hit me) all the way home because I didn't do what she wanted in terms of helping her. I was in quite a bad mood at the end of it, at which point she fell apart sobbing and saying she was useless. We talked for a bit and she seemed to settle, but that's heavy stuff.
We spent the afternoon at Little Manly for lunch and hanging out with Roz and Simon and the kids. It was a most enjoyable way to spend a beautiful day - the last of winter at that.
There was more screaming from Remie before dinner, so I ran off to my room. She found me later sobbing, which prompted another chat about being brave and positive. I feel so very sad that she is scared and angry and I can't get help for her. I'm going to try another avenue tomorrow as it seems we need a bit more support.
Sunday 31 August 2014
Saturday 30 August 2014
Day 355: Slowing down
Andrea, the physiotherapist at the Mt. Wilga lymphoedema clinic, told me I needed to slow down, reduce stress and relax to give my body time to focus on rebalancing. I did just that today.
After a swim and brekkie with Rach, Jenny and Ally, I saw Erika for a massage and wrapping. This time she bandaged over my glove, so I'm curious to see the results.
The weather was wet and cool, so we were all at home from lunch for the rest of the day. The kids played, Nick pottered in his workshop and I read and napped. It was very relaxed. Perhaps more "quiet time" will be part of the changes I'll end up making to deal with my new world order.
After a swim and brekkie with Rach, Jenny and Ally, I saw Erika for a massage and wrapping. This time she bandaged over my glove, so I'm curious to see the results.
The weather was wet and cool, so we were all at home from lunch for the rest of the day. The kids played, Nick pottered in his workshop and I read and napped. It was very relaxed. Perhaps more "quiet time" will be part of the changes I'll end up making to deal with my new world order.
Friday 29 August 2014
Day 354: Support
I'm trying to listen to myself and respond to what I need now. I think this may be a sigh that I'm finally maturing.
First off, I worked out that if I'm going to swim as I've been directed to time and time again, I need to meet a buddy. Rachel was my girl today. It was dumping with rain but she ran in, so I followed. It was lovely as the water temp was twice the air temp 26 v. 13)! The coffee and chat afterwards helped.
Secondly, I'm struggling with terrible Achilles and general tightness from my months of no regular exercise routine. Enter Renee, my awesome massage therapist whom I've known for nearly 4 years. Her massages hurt but I always feel infinitely better afterwards.
Finally, touching base again with key support people is helping me get grounded after our trip and my recent medical challenge. Alison was a great listener over lunch and offered all sorts of help for Remie.
Two hours after school of having Alex and T at our house making and flying paper airplanes was truly grounding. I'm so thankful I could have that as part of my day.
First off, I worked out that if I'm going to swim as I've been directed to time and time again, I need to meet a buddy. Rachel was my girl today. It was dumping with rain but she ran in, so I followed. It was lovely as the water temp was twice the air temp 26 v. 13)! The coffee and chat afterwards helped.
Secondly, I'm struggling with terrible Achilles and general tightness from my months of no regular exercise routine. Enter Renee, my awesome massage therapist whom I've known for nearly 4 years. Her massages hurt but I always feel infinitely better afterwards.
Finally, touching base again with key support people is helping me get grounded after our trip and my recent medical challenge. Alison was a great listener over lunch and offered all sorts of help for Remie.
Two hours after school of having Alex and T at our house making and flying paper airplanes was truly grounding. I'm so thankful I could have that as part of my day.
Thursday 28 August 2014
Day 353: Self-talk
Today I think I can adapt and overcome this challenge. I'm thinking of it as a 12 month learning process. I know it's not going to be easy but at least it's not life-threatening.
I went to the gym to experiment. I didn't wear my sleeve/glove as I only have one set and they'd get sweaty. My arm/hand don't seem any worse for it. I put my sleeve on after showering (Nick stretched it on a 1.5 litre bottle as per Dr. Helen's suggestion) so it was better, but it still pushes fluid into my hand. It'll be a challenge to get a balance.
Remie was in good form all day, which made it all easier. Combined with my day catching up on admin all was good. I topped off the day with a lovely birthday dinner for Rach with families at the Bavarian Beer Cafe, leaving me thankful for good friends.
I went to the gym to experiment. I didn't wear my sleeve/glove as I only have one set and they'd get sweaty. My arm/hand don't seem any worse for it. I put my sleeve on after showering (Nick stretched it on a 1.5 litre bottle as per Dr. Helen's suggestion) so it was better, but it still pushes fluid into my hand. It'll be a challenge to get a balance.
Remie was in good form all day, which made it all easier. Combined with my day catching up on admin all was good. I topped off the day with a lovely birthday dinner for Rach with families at the Bavarian Beer Cafe, leaving me thankful for good friends.
Wednesday 27 August 2014
Day 352: An intensive treatment plan
I went to the Mt. Wilga Lymphoedema Clinic today for an appointment with Dr. Helen, the rehabilitation doctor in charge. Nick and I were with her for about an hour, during which she took my medical history and explained more about the condition, what they offer for treatment and what I could realistically expect in my own case. It was exactly what I had been looking for.
We then met with Andrea, the head physiotherapist. After taking my medical history, she explained in greater detail that lymphoedema is caused by trauma to the lymphatic system (eg lymph node removal and radiotherapy). It can be brought on by a variety of events, and stress can make it worse. Different people experience it differently, with some having swelling in the hand and others not and some having longer and more severe 'flare-ups'.
Andrea walked us through the program they offer in greater detail, talking about the daily massage and bandaging, gym, psychologists and nutritionists. She explained that I'll be wearing a compression sleeve and glove for at least 18-24 months daily and that I should think of it as me post-treatment medicine. She offered me a 4 week daily program (3 hours/day M-F), but given the upcoming school holidays, I'm only going to be able to do 2 weeks starting on 8th September.
We left 2 hours later and I felt like I had finally received a treatment plan that seemed to make sense for the condition. For the first time in weeks I felt a bit optimistic.
Nick and I had lunch before doing a bit of shopping and getting the kids. I spent some time catching up on admin while he did homework with Remie and organised dinner. It was a great break.
Poor Remie is still struggling, having screamed at least a dozen times at one family member or another. She's saying "it's too hard" and telling us she wants to be a baby. She opened up more tonight saying that it's hard having a mum with cancer because I have to wear my compression stuff and then I have to go to hospital for treatment all the time and can't do fun things with her. She also said she's worried that her classmates will make fun of her if she cries in class because she's worried or sad. That's an awful lot for a nearly-7-year-old.
We then met with Andrea, the head physiotherapist. After taking my medical history, she explained in greater detail that lymphoedema is caused by trauma to the lymphatic system (eg lymph node removal and radiotherapy). It can be brought on by a variety of events, and stress can make it worse. Different people experience it differently, with some having swelling in the hand and others not and some having longer and more severe 'flare-ups'.
Andrea walked us through the program they offer in greater detail, talking about the daily massage and bandaging, gym, psychologists and nutritionists. She explained that I'll be wearing a compression sleeve and glove for at least 18-24 months daily and that I should think of it as me post-treatment medicine. She offered me a 4 week daily program (3 hours/day M-F), but given the upcoming school holidays, I'm only going to be able to do 2 weeks starting on 8th September.
We left 2 hours later and I felt like I had finally received a treatment plan that seemed to make sense for the condition. For the first time in weeks I felt a bit optimistic.
Nick and I had lunch before doing a bit of shopping and getting the kids. I spent some time catching up on admin while he did homework with Remie and organised dinner. It was a great break.
Poor Remie is still struggling, having screamed at least a dozen times at one family member or another. She's saying "it's too hard" and telling us she wants to be a baby. She opened up more tonight saying that it's hard having a mum with cancer because I have to wear my compression stuff and then I have to go to hospital for treatment all the time and can't do fun things with her. She also said she's worried that her classmates will make fun of her if she cries in class because she's worried or sad. That's an awful lot for a nearly-7-year-old.
Tuesday 26 August 2014
Day 351: Frustration and grieving
Another visit with Dr. Theresa left me feeling sad and blue. She told me I'm going through the stages of grief and I will come to a point of acceptance. She also told me that I need to be wearing my compression garments for all of my waking hours. My l-Dex score went from 60.5 down to 56, but she'd like to see it drop more quickly. Clearly my body isn't doing that by itself, but there's no plan for regular treatment to help it. She was supportive of my assessment and treatment at Mt. Wilga but counselled me that I may not get in there for awhile as they often have a huge waiting list.
My frustration is that no one can clearly tell me what needs to happen. From all the reading I've done, it seems that early intervention is key, but how early is early? I'm wondering if treatment at an intensive clinic will yield better results. Perhaps not necessarily, and that's why no one recommended it earlier.
I finished my appointment and caught up with Ruth. I started my grieving with floods of tears that I expect to see more of before I hit the acceptance point.
In all of my self-absorption and sadness I'd forgotten Remie's book order when I dropped the kids off at French before school. Her poor face crumpled when she realised it, so I managed to drop it by on my way to the hospital.
I was hoping to be celebrating as my one year anniversary of diagnosis approaches, but instead I'm back into appointments. Plus Remie is anxious and scared. Sometimes life is really hard.
My frustration is that no one can clearly tell me what needs to happen. From all the reading I've done, it seems that early intervention is key, but how early is early? I'm wondering if treatment at an intensive clinic will yield better results. Perhaps not necessarily, and that's why no one recommended it earlier.
I finished my appointment and caught up with Ruth. I started my grieving with floods of tears that I expect to see more of before I hit the acceptance point.
In all of my self-absorption and sadness I'd forgotten Remie's book order when I dropped the kids off at French before school. Her poor face crumpled when she realised it, so I managed to drop it by on my way to the hospital.
I was hoping to be celebrating as my one year anniversary of diagnosis approaches, but instead I'm back into appointments. Plus Remie is anxious and scared. Sometimes life is really hard.
Monday 25 August 2014
Day 350: More reduction in swelling.
I spent most of my kid-free time today catching up on my admin tasks and errands. It felt good to be making at least some progress. I fit a walk in around the errands which was great as the sunshine was good for my soul.
I'm finding the lack of a regular exercise routine quite frustrating. Walking was pretty much the only option today with my hand/arm as bandaged as it was so thankfully the weather cooperated. I may try to create my own yoga routine that I can do when I'm bandaged again.
I took off the bandages about 6p and the great news is that I have fingers, a hand (still a bit puffy) and a forearm again. I can still feel fluid in my knuckles and in the back of my hand, but my fingers are nearly normal and I could get a watch on my wrist. I am amazed at how effective Erika's wrapping was. I'm curious to see if Dr. Theresa will bandage me again tomorrow at my appointment.
I'm encouraged that my arm has finally returned to a state approaching acceptable. Pity it's taken nearly 4 weeks to achieve this result as I think my emotional state would have been less impacted with quicker results. I'm trying to look at this first "episode" of lymphoedema as a real life case study to learn from so I know what to do when it next happens. I'm trying to create my toolkit (therapists, tools (bandages and compression garments) and exercises) so I can use it next time. I'm hoping that Dr. Helen and the practitioners at the Mt Wilga Clinic will add to this when I see them on Wednesday.
I'm finding the lack of a regular exercise routine quite frustrating. Walking was pretty much the only option today with my hand/arm as bandaged as it was so thankfully the weather cooperated. I may try to create my own yoga routine that I can do when I'm bandaged again.
I took off the bandages about 6p and the great news is that I have fingers, a hand (still a bit puffy) and a forearm again. I can still feel fluid in my knuckles and in the back of my hand, but my fingers are nearly normal and I could get a watch on my wrist. I am amazed at how effective Erika's wrapping was. I'm curious to see if Dr. Theresa will bandage me again tomorrow at my appointment.
I'm encouraged that my arm has finally returned to a state approaching acceptable. Pity it's taken nearly 4 weeks to achieve this result as I think my emotional state would have been less impacted with quicker results. I'm trying to look at this first "episode" of lymphoedema as a real life case study to learn from so I know what to do when it next happens. I'm trying to create my toolkit (therapists, tools (bandages and compression garments) and exercises) so I can use it next time. I'm hoping that Dr. Helen and the practitioners at the Mt Wilga Clinic will add to this when I see them on Wednesday.
Sunday 24 August 2014
Day 349: Claw hand
After a terrible night of huge intestinal carmps, I slept until 7.30a. This is a 10-year first in terms of wake-up times. Usually Remie is in waking me by 6.30a, but she's been getting up and reading. Today it was Alex who came in first. Ahh, the times are changing.
I fit in a short walk while my family went bike riding (I couldn't get on my bike with my bandaged arm). Erika spent another 1 1/2 hours with me on massage and bandaging. She put lots of padding on my hand to move the fluid out so it looks likea claw. The good news is that yesterday's bandaging brought the swelling down lots, so hopefully this will make more progress.
A lovely lunch at Jen and Owen's was followed by a lazy arvo watching the Swannies win. Alex hung with me while Nick and Remie went down to the beach to find pets (thankfully they came home empty handed).
Everything seems hard at the moment. Sure, figuring out how to do things with one arm is challenging, but I know it won't be forever. I think I'm just generally down in the dumps. I know that it'll pass, so I'm just going to enjoy my sleeping and take the time to lay low. I'll do my best to put on a positive face to help Remie, and it may help me, too.
I fit in a short walk while my family went bike riding (I couldn't get on my bike with my bandaged arm). Erika spent another 1 1/2 hours with me on massage and bandaging. She put lots of padding on my hand to move the fluid out so it looks likea claw. The good news is that yesterday's bandaging brought the swelling down lots, so hopefully this will make more progress.
A lovely lunch at Jen and Owen's was followed by a lazy arvo watching the Swannies win. Alex hung with me while Nick and Remie went down to the beach to find pets (thankfully they came home empty handed).
Everything seems hard at the moment. Sure, figuring out how to do things with one arm is challenging, but I know it won't be forever. I think I'm just generally down in the dumps. I know that it'll pass, so I'm just going to enjoy my sleeping and take the time to lay low. I'll do my best to put on a positive face to help Remie, and it may help me, too.
Saturday 23 August 2014
Day 348: A week of treatment
Nick got home this morning and we all went to my weekly girls' brekkie to catch up with the other families. We had a grown up table and a kids table. It was a fun change.
Then I saw Erika for massage and bandaging. It took about 1 1/2 hours for her to move lots of the fluid out of my hand and then wrap it plus my arm up to keep the fluid moving up and out of my arm. At $125 it is a bargain. Unfortunately I have reached my health fun benefit limit for physiotherapy, and since Medicare won't cover it (Medicare doesn't recognise lymphoedema as a chronic condition that requires regular treatment), my out of hospital treatments will be out of pocket.
I will see Erika again tomorrow. On Tuesday I'll see Dr. Theresa. On Wednesday I'll go to the Mt. Wilga lymphoedema clinic for an assessment with Dr. Helen (I understand that any treatment I get there may be covered as in-hospital so my health fund should pay). I'm hopeful that insensible treatment will help get this under control.
We had an enjoyable afternoon at the Mythbusters live show, then Japanese for dinner at King Street Wharf. I now have an aching gut and hope that it will pass while I sleep.
Then I saw Erika for massage and bandaging. It took about 1 1/2 hours for her to move lots of the fluid out of my hand and then wrap it plus my arm up to keep the fluid moving up and out of my arm. At $125 it is a bargain. Unfortunately I have reached my health fun benefit limit for physiotherapy, and since Medicare won't cover it (Medicare doesn't recognise lymphoedema as a chronic condition that requires regular treatment), my out of hospital treatments will be out of pocket.
I will see Erika again tomorrow. On Tuesday I'll see Dr. Theresa. On Wednesday I'll go to the Mt. Wilga lymphoedema clinic for an assessment with Dr. Helen (I understand that any treatment I get there may be covered as in-hospital so my health fund should pay). I'm hopeful that insensible treatment will help get this under control.
We had an enjoyable afternoon at the Mythbusters live show, then Japanese for dinner at King Street Wharf. I now have an aching gut and hope that it will pass while I sleep.
Friday 22 August 2014
Day 347: First anniversary check up
As I'm coming up to the one year anniversary of my diagnosis, it was time for my first annual mammogram and ultrasound. The poor girl at the Mater Imaging checked me in at 10.20a and asked if they were doing a full mammogram and ultrasound. I replied with something totally inappropriate about only having one side to do and she was a bit flustered.
The mammogram was fine with a normal result. The same went for the ultrasound. I asked the sonographer to check my scar and left chest wall just for peace of mind. Again, all looked normal.
When she finished, I asked if she could look at the lump on my left forearm as I had an ultrasound booked in for Tuesday. She had the time so had a scan. There's definitely something there, but she didn't know what it is and didn't think it looked nasty.
I went over to see Dr. Fran and started my 12.40p appointment with Dr. Ben. We talked lots about my arm, then about any lingering symptoms post-chemo (none) and general health (good). He did an exam and seemed happy that the swelling hadn't spread to my armpit or breast. He then mused that my arm swelling might be caused my a blood clot as the Tamoxifen makes me more susceptible to clotting on long flights. He wrote me a referral for an upper arm ultrasound and got it scheduled for 2p. He wanted to be sure before the weekend as it would've meant me coming off Tamoxifen, going on a blood-thinner for a bit and looking into an oopherectomy so I could go on an aromatise inhibitor instead.
Dr. Fran came in and we discussed lymphoedema (a tough one for the medical profession, in part because it is not recognised by Medicare and thus treatment is not covered), a possible prophylactic mastectomy (doesn't reduce chances of a metastesis as cancer rarely moves to the other breast; any cancer in the remaining breast is usually a new one) and a possible oopherectomy. We discussed the fact that my ovaries may not be producing much oestrogen anymore, so most of it would be coming from my fat cells. I worked out that reducing fat cells would reduce oestrogen production, and Dr. Fran agreed, "especially around the mid-section", she added.
I fit in a quick lunch with Deb and Roz, then headed back for my ultrasound on my possible clot. All was fine. I checked in with Dr. Ben and got the ok to go, 4 1/2 hours after arriving. So much for my day.
I'd managed to sort out with Emma that she would get the kids, which was great as I would've been late. The logistics of these unexpected tests and appointments can be challenging. They were happy to see her, so all was good.
I ended that madness of the day with a peaceful dinner with Jenna.
The mammogram was fine with a normal result. The same went for the ultrasound. I asked the sonographer to check my scar and left chest wall just for peace of mind. Again, all looked normal.
When she finished, I asked if she could look at the lump on my left forearm as I had an ultrasound booked in for Tuesday. She had the time so had a scan. There's definitely something there, but she didn't know what it is and didn't think it looked nasty.
I went over to see Dr. Fran and started my 12.40p appointment with Dr. Ben. We talked lots about my arm, then about any lingering symptoms post-chemo (none) and general health (good). He did an exam and seemed happy that the swelling hadn't spread to my armpit or breast. He then mused that my arm swelling might be caused my a blood clot as the Tamoxifen makes me more susceptible to clotting on long flights. He wrote me a referral for an upper arm ultrasound and got it scheduled for 2p. He wanted to be sure before the weekend as it would've meant me coming off Tamoxifen, going on a blood-thinner for a bit and looking into an oopherectomy so I could go on an aromatise inhibitor instead.
Dr. Fran came in and we discussed lymphoedema (a tough one for the medical profession, in part because it is not recognised by Medicare and thus treatment is not covered), a possible prophylactic mastectomy (doesn't reduce chances of a metastesis as cancer rarely moves to the other breast; any cancer in the remaining breast is usually a new one) and a possible oopherectomy. We discussed the fact that my ovaries may not be producing much oestrogen anymore, so most of it would be coming from my fat cells. I worked out that reducing fat cells would reduce oestrogen production, and Dr. Fran agreed, "especially around the mid-section", she added.
I fit in a quick lunch with Deb and Roz, then headed back for my ultrasound on my possible clot. All was fine. I checked in with Dr. Ben and got the ok to go, 4 1/2 hours after arriving. So much for my day.
I'd managed to sort out with Emma that she would get the kids, which was great as I would've been late. The logistics of these unexpected tests and appointments can be challenging. They were happy to see her, so all was good.
I ended that madness of the day with a peaceful dinner with Jenna.
Thursday 21 August 2014
Day 346: Hope
The kids were in great form this morning. Piano lessons went well and they were helpful, aside from Remie's minor fit about not being able to find her jacket.
I had a challenging workout at the gym that helped adjust my attitude to one of being able to get through these current challenges. I find a bit of cardio and some good music can't do anything but help.
I came home to find a package containing my "custom compression garments" by the door. I never thought I'd feel so happy to receive my glove.
Lunch with Camille was uplifting. She's going to give me her plastic surgeon's details to get a second opinion on a tissue reconstruction.
When I picked up the kids poor Remie started crying as soon as she got in the car because she'd lost her drink bottle. Upon further inspection, her entire sandwich was still in her lunchbox, and her drink bottle (which Alex ran in to find) was full. After a bit of a battle over afternoon tea, we settled in and had a lovely afternoon.
Kate came by with a bottle of wine just before Alex went to bed. It was really great to have some adult company with whom to talk about families and dramas.
Right before she left, I took off my glove that I'd been wearing for 4 hours and my hand felt the best it has in 3 weeks. The fluid has all moved up my arm, but I think that's what it's supposed to do. With 2 treatments on the weekend then one on Tuesday and the clinic appoitment on Wednesday, I can see there's a light of some sort at the end of the tunnel.
I had a challenging workout at the gym that helped adjust my attitude to one of being able to get through these current challenges. I find a bit of cardio and some good music can't do anything but help.
I came home to find a package containing my "custom compression garments" by the door. I never thought I'd feel so happy to receive my glove.
Lunch with Camille was uplifting. She's going to give me her plastic surgeon's details to get a second opinion on a tissue reconstruction.
When I picked up the kids poor Remie started crying as soon as she got in the car because she'd lost her drink bottle. Upon further inspection, her entire sandwich was still in her lunchbox, and her drink bottle (which Alex ran in to find) was full. After a bit of a battle over afternoon tea, we settled in and had a lovely afternoon.
Kate came by with a bottle of wine just before Alex went to bed. It was really great to have some adult company with whom to talk about families and dramas.
Right before she left, I took off my glove that I'd been wearing for 4 hours and my hand felt the best it has in 3 weeks. The fluid has all moved up my arm, but I think that's what it's supposed to do. With 2 treatments on the weekend then one on Tuesday and the clinic appoitment on Wednesday, I can see there's a light of some sort at the end of the tunnel.
Wednesday 20 August 2014
Day 345: Kids
Poor Remie wasn't excited about going to school this morning. She got sad when I dropped Alex and her off; I thought she might cry, but she bravely headed into the school yard.
All my specialists tell me that exercise is key to recovering from treatment and getting the lymphoedema under control. So I went to the gym today. I'm not supposed to do any weights, so I got on the spin bike (not easy when you can't use one arm) and did all my hip exercises. If nothing else, it helped my head.
Ruth came by for lunch. Before we were finished, I'd received a call from school to pick up Alex who was unwell. When I got there, I checked in with Remie, whose class was doing computers, to see if she wanted to come home. She said she wanted to stay, and one of her friend's mum, who was helping with computers, offered to bring her home.
Alex rested while Ruth and I talked. He seemed to just be run down. When Remie got home they played happily for awhile. It's so nice when they get along.
We needed to decide if Remie would be interested in the Mythbusters show we're taking Alex to on Saturday, so Alex set up a little cinema in his room using my iPad for Remie to check it out. It was a great little treat for Remie.
All my specialists tell me that exercise is key to recovering from treatment and getting the lymphoedema under control. So I went to the gym today. I'm not supposed to do any weights, so I got on the spin bike (not easy when you can't use one arm) and did all my hip exercises. If nothing else, it helped my head.
Ruth came by for lunch. Before we were finished, I'd received a call from school to pick up Alex who was unwell. When I got there, I checked in with Remie, whose class was doing computers, to see if she wanted to come home. She said she wanted to stay, and one of her friend's mum, who was helping with computers, offered to bring her home.
Alex rested while Ruth and I talked. He seemed to just be run down. When Remie got home they played happily for awhile. It's so nice when they get along.
We needed to decide if Remie would be interested in the Mythbusters show we're taking Alex to on Saturday, so Alex set up a little cinema in his room using my iPad for Remie to check it out. It was a great little treat for Remie.
Tuesday 19 August 2014
Day 344: Meltdowns
It's been building over the past few weeks, so I feel like it's time to let it out. F*^K cancer. It had taken my weekly routines and replaced them with visits to doctors, nurses and therapists; it has made me question my belief that eating well and exercising regularly means I can enjoy life; it has robbed me of the faith I once had in my body's ability to fix itself, even if it needs help; it has given me a daily worry that I might have to say goodbye to my kids too son; and it has taken my daughter's sense of security and put fear, anger and sadness in its place. Bloody cancer.
When I picked the kids up from school today, Remie burst into tears in the car. She said she was sad that I'm not well and she's worried that I'm never going to be well again. Her focus is the appearance of my hand and arm, but she also sees how it is implacting my movements. We had a big cuddle when we got home and talked about my treatment for it, so she seemed to calm down.
Then tonight I receive the following email from Remie's teacher:
"Hi Nancie,
Just wanted to let you know that Rem had quite a bit meltdown this morning in class.
When we were talking about our feelings she said she didn't want to be at school today and then broke out in tears saying she just wished that mum was better. She went on to say about your hand and a few other things that were upsetting her.
I meant to email you today but it was just a crazy day. I ended up talking to her and the class for about 15 minutes about what a hard situation she and your family are going through and how amazing you have all dealt with it so far. Also that unfortunately cancer doesn't just disappear and that she has to keep on being amazing and bouncing back as much as she can but whenever she needs just to let it out and talk to me and the class whenever she wants.
She was much happier after that conversation and ended up having a great day. I do think she is best to come to school but I did suggest maybe a special mum daughter day some time soon. Not sure what your thoughts are?
Poor little thing, my heart broke when she got upset :( "
When I picked the kids up from school today, Remie burst into tears in the car. She said she was sad that I'm not well and she's worried that I'm never going to be well again. Her focus is the appearance of my hand and arm, but she also sees how it is implacting my movements. We had a big cuddle when we got home and talked about my treatment for it, so she seemed to calm down.
Then tonight I receive the following email from Remie's teacher:
"Hi Nancie,
Just wanted to let you know that Rem had quite a bit meltdown this morning in class.
When we were talking about our feelings she said she didn't want to be at school today and then broke out in tears saying she just wished that mum was better. She went on to say about your hand and a few other things that were upsetting her.
I meant to email you today but it was just a crazy day. I ended up talking to her and the class for about 15 minutes about what a hard situation she and your family are going through and how amazing you have all dealt with it so far. Also that unfortunately cancer doesn't just disappear and that she has to keep on being amazing and bouncing back as much as she can but whenever she needs just to let it out and talk to me and the class whenever she wants.
She was much happier after that conversation and ended up having a great day. I do think she is best to come to school but I did suggest maybe a special mum daughter day some time soon. Not sure what your thoughts are?
Poor little thing, my heart broke when she got upset :( "
Poor Remie indeed. I feel so sad that she is so sad and never mentioned it to me. I wonder if she doesn't want to burden me, or maybe thinks I don't want to hear it. Hmmm, it's time for a chat.
On a more exiting note, I have an assessment appointment next Wednesday at the Mt. Wolgan Lymphoedema Clinic. They run an intensive program with care from doctors, massage therapists and physios. They are the only hospital in Sydney that has a dedicated lymphoedema program and is "the gold standard" for treatment, say my breast care nurses.
I rang Mt. Wilga after my talk with Claire. We covered my efforts to get treatment for a condition for which there aren't enough therapists. We also talked about my somewhat shaky mental state and my need to get in to see one of the counsellors associated with the Mater. I may try to get Remie back in as well.
Just to make sure my plate is well and truly full, I was the innocent party in a rear-end collision that saw no harm come to all involved (I was taking Alex and a friend to Cubs; they thought it was very exciting) but saw some minor damage to my car (and more to the other car). I really didn't need another hassle.
Monday 18 August 2014
Day 343: Specialist referrals and fears
It was a wet and dreary day punctuated by seeing Michelle, who used to babysit my kids, and meeting her gorgeous baby, Nate, seeing Dr. Karen and grabbing a bit with Hiraani. The kids were in great form (Remie even apologised after screaming at me) and not missing dad too much yet.
I saw Dr. Karen for referrals to Dr. Andrew (they only last a year) and Dr. Alex, the plastic surgeon I'm going to see in a few weeks to gather information about a tissue reconstruction. She also wrote me a "care plan" for my lymphoedema, which means Medicare will cover some portion of 5 physio fees for treatment. She gave me a referral for an ultrasound on the lump in my left forearm that I noticed a week ago but forgot to mention to my doctors in any of the 3 visits I had in the past week (!).
I am plagued by a feeling that my body is failing me and I am slightly adrift. It was undoubtedly the presenting of the lymphoedema that kicked it off, but our discussion with Dr. Andrew last week about metastases really set me on edge. Perhaps it was his use of the words "you had a couple of nasty cancers" that brought the whole situation home. I find myself cuddling with the kids and hoping that I don't leave them too soon. I am doing my best to focus on the positives despite getting back on the oncology merry-go-round and suspect my outlook will improve when my hand swelling is under control and I can get back to a "regular" routine.
I saw Dr. Karen for referrals to Dr. Andrew (they only last a year) and Dr. Alex, the plastic surgeon I'm going to see in a few weeks to gather information about a tissue reconstruction. She also wrote me a "care plan" for my lymphoedema, which means Medicare will cover some portion of 5 physio fees for treatment. She gave me a referral for an ultrasound on the lump in my left forearm that I noticed a week ago but forgot to mention to my doctors in any of the 3 visits I had in the past week (!).
I am plagued by a feeling that my body is failing me and I am slightly adrift. It was undoubtedly the presenting of the lymphoedema that kicked it off, but our discussion with Dr. Andrew last week about metastases really set me on edge. Perhaps it was his use of the words "you had a couple of nasty cancers" that brought the whole situation home. I find myself cuddling with the kids and hoping that I don't leave them too soon. I am doing my best to focus on the positives despite getting back on the oncology merry-go-round and suspect my outlook will improve when my hand swelling is under control and I can get back to a "regular" routine.
Sunday 17 August 2014
Day 342: Some success
It was a rainy morning after a terrible sleep (my hand got sore from the bandaging), so I stayed in bed until Remie came in at 7.20a because She " thought I would want to be up". The morning was very lazy until Rachel came by with E and M for a play date. I got to talk to my mum after her corneal transplant surgery while the kids entertained themselves. Rach came back for lunch, then she and I had a walk and found me a poncho that I can wear while my arm is wrapped up big.
I did as Erika instructed and took off the bandages just before dinner to find that my fingers and hand were greatly reduced. I'm so very pleased to have more movement. My arm is still pretty swollen, but at least the lymphatic fluid is moving in the right direction (up my arm and out through my torso).
Nick's off tomorrow morning until Saturday morning. He did all the food prep plus extra chores this weekend as he feels badly. I'll just remember how nice it was to have him around for our holiday. And I'll watch the rest of series 2 of "House of Cards".
I did as Erika instructed and took off the bandages just before dinner to find that my fingers and hand were greatly reduced. I'm so very pleased to have more movement. My arm is still pretty swollen, but at least the lymphatic fluid is moving in the right direction (up my arm and out through my torso).
Nick's off tomorrow morning until Saturday morning. He did all the food prep plus extra chores this weekend as he feels badly. I'll just remember how nice it was to have him around for our holiday. And I'll watch the rest of series 2 of "House of Cards".
Saturday 16 August 2014
Day 341: Massage and bandaging
I woke at 6.40a feeling much better. After a gorgeous swim with Jenny and brekkie with Jenny and Rach, I came home and cleaned my room as the kids were doing theirs.
I walked 10 mins in the pouring rain to my appointment with Erica, a trained lymphoedema specialist. I fount her on the Australasian Lymphoedema Register and contacted her 2 weeks ago when I couldn't get into the specialists at the Mater. She asked about my experience so far then got into a lymphatic drainage massage, at the end of which my hand looked much better. She then bandaged my fingers, hand and arm to help the movement she made continue towards my armpit and central lymphatic system. I was in with her for nearly 2 hours and will see her again next Saturday and Sunday. The bandages ideally stay on until tomorrow night, after which time I go back to the compression sleeve and glove with bandage on top.
A family lunch at a local pizza place was followed by an afternoon on the couch. It was lovely. Nick did dinner for the kids as my hand is a bit immobilised. We had a lovely dinner with Sue, Archie, Eimer and Mike. Now it's time to fall asleep to the sound of the rain. I'm so glad I'm not in a tent.
I walked 10 mins in the pouring rain to my appointment with Erica, a trained lymphoedema specialist. I fount her on the Australasian Lymphoedema Register and contacted her 2 weeks ago when I couldn't get into the specialists at the Mater. She asked about my experience so far then got into a lymphatic drainage massage, at the end of which my hand looked much better. She then bandaged my fingers, hand and arm to help the movement she made continue towards my armpit and central lymphatic system. I was in with her for nearly 2 hours and will see her again next Saturday and Sunday. The bandages ideally stay on until tomorrow night, after which time I go back to the compression sleeve and glove with bandage on top.
A family lunch at a local pizza place was followed by an afternoon on the couch. It was lovely. Nick did dinner for the kids as my hand is a bit immobilised. We had a lovely dinner with Sue, Archie, Eimer and Mike. Now it's time to fall asleep to the sound of the rain. I'm so glad I'm not in a tent.
Friday 15 August 2014
Day 340: Allergies
I have been reduced to a snot-dripping, eye-watering, non-functioning heap thanks to what I think are allergies. There is a chance that, after a Telfast at 7.30a and a Claratine-D at 2p, plus the recent onset of chills, this is the start of a cold. Whatever it is, it has wiped me out.
Renee came to sort me out with a massage. She managed to get lots of the lymphatic fluid out of my hand, but it all went back once I put my sleeve, glove and bandage on. My tight lower back is undoubtedly contributing to my Achilles issues. I am now convinced that my exercise not only feels good but keeps me healthy. I'm still paying the price for 7 weeks of relative inactivity.
On that subject, I went to the pool and swam 1km. It is supposed to be helpful in reducing lymphoedema, and it's good with my hip, so I suspect I'll be doing more of it. It's not at all the same as running, but I'm hoping I can learn to love it.
Finally, I spent 9.5 hours today in my sleeve, glove and bandage. I think I could do a better job with the latter, so maybe I'll get Nick's help tomorrow.
Renee came to sort me out with a massage. She managed to get lots of the lymphatic fluid out of my hand, but it all went back once I put my sleeve, glove and bandage on. My tight lower back is undoubtedly contributing to my Achilles issues. I am now convinced that my exercise not only feels good but keeps me healthy. I'm still paying the price for 7 weeks of relative inactivity.
On that subject, I went to the pool and swam 1km. It is supposed to be helpful in reducing lymphoedema, and it's good with my hip, so I suspect I'll be doing more of it. It's not at all the same as running, but I'm hoping I can learn to love it.
Finally, I spent 9.5 hours today in my sleeve, glove and bandage. I think I could do a better job with the latter, so maybe I'll get Nick's help tomorrow.
Thursday 14 August 2014
Day 339: Removable bandages and reconstruction options
I didn't get out of bed until 7a. No one came to me prior to that. Wow. That's rare.
Grace, our piano teacher who comes to us on Thursday mornings, was kind enough to do Remie's hair because I couldn't. She did gorgeous French braids and set the standard very high.
Rachel, Nadia and I had a rejuvenating walk and coffee after drop off. Carrying my grocery shopping into the house afterwards was a bit if a challenge. Then I got to take off the bandages and have a shower. Bliss!
I saw Carol, the other lymphoedema physio, for my next steps. She ran my L-Dex (lymphoedema index) score, which had come down to a 60 from 77 (normal is under 10). She explained that the lymphatic fluid that is causing my problem is in the tissue, not sealed like blood in veins, which it why it can't be detained. She also gave a timeline for getting this "episode" under control that has Christmas as it's endpoint (!). She took all sorts of measurements on my arm for a custom sleeve and glove. She then gave me an off-the-shelf sleeve and gauntlet (glove without fingers) to use until my custom items come in next week.
From there I crossed the foyer and went to talk to Dr. Andrew about getting my expander out and next steps surgically. We discussed the lymphoedema and then I broached how I want to proceed. I said I wanted my right breast removed for peace of mind and symmetry. He said he wouldn't do any surgery until 6 months post-treatment (November). He urged me to consider a DIEP reconstruction as it used my own tissue (from my abdomen) to rebuilt, meaning I wouldn't be using a foreign body, which could help with the lymphoedema. He also suggested I look into lymph node transplant. He urged me not to rush my decision and sent me away to gather more information and think about it. I will indeed do this as a full rebuild was not on my radar.
Bedtime was easier with Nick home. Alex, however, woke at 9.30p crying and saying he was "sad". He didn't seem to know why.
Grace, our piano teacher who comes to us on Thursday mornings, was kind enough to do Remie's hair because I couldn't. She did gorgeous French braids and set the standard very high.
Rachel, Nadia and I had a rejuvenating walk and coffee after drop off. Carrying my grocery shopping into the house afterwards was a bit if a challenge. Then I got to take off the bandages and have a shower. Bliss!
I saw Carol, the other lymphoedema physio, for my next steps. She ran my L-Dex (lymphoedema index) score, which had come down to a 60 from 77 (normal is under 10). She explained that the lymphatic fluid that is causing my problem is in the tissue, not sealed like blood in veins, which it why it can't be detained. She also gave a timeline for getting this "episode" under control that has Christmas as it's endpoint (!). She took all sorts of measurements on my arm for a custom sleeve and glove. She then gave me an off-the-shelf sleeve and gauntlet (glove without fingers) to use until my custom items come in next week.
From there I crossed the foyer and went to talk to Dr. Andrew about getting my expander out and next steps surgically. We discussed the lymphoedema and then I broached how I want to proceed. I said I wanted my right breast removed for peace of mind and symmetry. He said he wouldn't do any surgery until 6 months post-treatment (November). He urged me to consider a DIEP reconstruction as it used my own tissue (from my abdomen) to rebuilt, meaning I wouldn't be using a foreign body, which could help with the lymphoedema. He also suggested I look into lymph node transplant. He urged me not to rush my decision and sent me away to gather more information and think about it. I will indeed do this as a full rebuild was not on my radar.
Bedtime was easier with Nick home. Alex, however, woke at 9.30p crying and saying he was "sad". He didn't seem to know why.
Wednesday 13 August 2014
Day 338: Making peace with my flipper
I'm at 36 hours of bandaging and all is ok. It doesn't hurt and I'm getting by fine with the discomfort and figuring out how to do things one-handed.
Showering was entertaining as I wrapped my arm in glad wrap, then realised I needed help with bottles of shampoo etc. Alex was my saviour (the glad wrap was his idea). Bless.
A coffee with Sara before the kids' class skit at assembly helped my headspace, as did a brief pop in to see Mel. I am thinking more positively about the long-term outcome and putting the time that treatment may take into the perspective of many years.
Catching up with Roz and Deb for lunch was wonderful; I always feel positive after time with them. I did manage to break a glass with what Justin has called my "flipper", but that was it.when I complained about how hard it is to wash my hand, Roz said, "Makes you think about how people with no arms get along". I don't feel sorry for myself anymore.
The kids are being really helpful. We'll get through this. Nick's home tomorrow (though then away again next week) so I'll have some help. Now I just have to figure out what to wear over the bulk of the bandage to keep me warm...
Showering was entertaining as I wrapped my arm in glad wrap, then realised I needed help with bottles of shampoo etc. Alex was my saviour (the glad wrap was his idea). Bless.
A coffee with Sara before the kids' class skit at assembly helped my headspace, as did a brief pop in to see Mel. I am thinking more positively about the long-term outcome and putting the time that treatment may take into the perspective of many years.
Catching up with Roz and Deb for lunch was wonderful; I always feel positive after time with them. I did manage to break a glass with what Justin has called my "flipper", but that was it.when I complained about how hard it is to wash my hand, Roz said, "Makes you think about how people with no arms get along". I don't feel sorry for myself anymore.
The kids are being really helpful. We'll get through this. Nick's home tomorrow (though then away again next week) so I'll have some help. Now I just have to figure out what to wear over the bulk of the bandage to keep me warm...
Tuesday 12 August 2014
Day 337: Diagnosis
Steph welcomed the kids at 7.30a and I hopped into the car to drive through the 10kms in peak hour traffic to get to my 8.30a appointment. Happily I made it.
Dr. Theresa was wonderful. She took a tape measure to my hand and arm then did an LDEX test which is specific for measuring lymphoedema. An average score is under 10; I got a 77.
Dr. Theresa explained that we needed to start with compression bandaging in the hopes of moving the lymph out of the arm, so she went to get supplies. She called it "a bit of a craft project" and set to work wrapping my fingers, hand and arm. This will be on until Thursday, when the wrap will be changed and kept in place for up to 3 days. Then it's on to wrapping with washable bandages until I get my custom made compression sleeve and glove, which takes 10 days. Oh joy. At least it's not painful, only uncomfortable and annoying.
I learned that the receptionists were not in a hurry to get me in because they thought I was a new patient; they had misspelled my surname on my first visit so there was no match. Thinking that I could've started this treatment a week ago were it not for this stuff up is indeed frustrating.
The upside of having limited mobility is that the kids were amazingly helpful this afternoon. They happily did a few extra tasks. Alex even tried his hand at chopping beans. I can only hope it continues.
Dr. Theresa was wonderful. She took a tape measure to my hand and arm then did an LDEX test which is specific for measuring lymphoedema. An average score is under 10; I got a 77.
Dr. Theresa explained that we needed to start with compression bandaging in the hopes of moving the lymph out of the arm, so she went to get supplies. She called it "a bit of a craft project" and set to work wrapping my fingers, hand and arm. This will be on until Thursday, when the wrap will be changed and kept in place for up to 3 days. Then it's on to wrapping with washable bandages until I get my custom made compression sleeve and glove, which takes 10 days. Oh joy. At least it's not painful, only uncomfortable and annoying.
I learned that the receptionists were not in a hurry to get me in because they thought I was a new patient; they had misspelled my surname on my first visit so there was no match. Thinking that I could've started this treatment a week ago were it not for this stuff up is indeed frustrating.
The upside of having limited mobility is that the kids were amazingly helpful this afternoon. They happily did a few extra tasks. Alex even tried his hand at chopping beans. I can only hope it continues.
Monday 11 August 2014
Day 336: Surgical "counselling" and physio appointment (finally)
I slept with my left arm on a pillow last night so my hand wasn't too puffy this morning; I could even make a fist.
Jo dropped off her 3 kids at 7.45a so the kids had some company before we walked to school. I met with Remie's teacher who said she is perfectly well-behaved in class. I guess she just saves the bad stuff for home.
During my coffee catch up with Aileen, we came up with a list of positive takes on my cancer-fighting experiences as follows:
1. I would not have cut my hair short and I am loving it.
2. It's winter so any lymphoedema treatment that involves bandaging won't be hot or obvious.
3. I can exercise my left arm by using it to drink copious amounts to ideally dehydrate and get rid of the excess fluid (though this remains to be confirmed by a medical specialist).
I went to the hospital to meet with the breast care nurse regarding my next steps and options for surgery as I've been contemplating having my right breast and ovaries (my cancer is estrogen-fed) removed for peace of mind. As the breast care nurses' office is in chemo cottage, I had the opportunity to appreciate the supportive environment again.
Michiko had a look at my arm to start and suggested I try to get to see one of the physios who work at the hospital in their other clinics since they are only in a few days a week. We then discussed the optional mastectomy (possibility of an immediate reconstruction or the expander process if not, symmetry issues, recovery) and the oopherectomy (possible impacts on how I'm currently going through menopause, surgery scheduling as a different surgeon would be responsible, recovery). I have my questions now for Dr. Andrew and Dr. Fran as well as another doctor to meet regarding my ovaries. The fun never stops.
Michi called in Kerry, another nurse, who had a look at my arm and the little hard lump I found yesterday. They agreed that it would be better for me to see so done sooner rather than later and managed to get me an 8.30a appointment tomorrow with Dr. Theresa, who is the person who I saw before my trip for my compression sleeve and glove. I'm feeling apprehensive and relieved to think I'll have information and a treatment plan tomorrow.
Jo dropped off her 3 kids at 7.45a so the kids had some company before we walked to school. I met with Remie's teacher who said she is perfectly well-behaved in class. I guess she just saves the bad stuff for home.
During my coffee catch up with Aileen, we came up with a list of positive takes on my cancer-fighting experiences as follows:
1. I would not have cut my hair short and I am loving it.
2. It's winter so any lymphoedema treatment that involves bandaging won't be hot or obvious.
3. I can exercise my left arm by using it to drink copious amounts to ideally dehydrate and get rid of the excess fluid (though this remains to be confirmed by a medical specialist).
I went to the hospital to meet with the breast care nurse regarding my next steps and options for surgery as I've been contemplating having my right breast and ovaries (my cancer is estrogen-fed) removed for peace of mind. As the breast care nurses' office is in chemo cottage, I had the opportunity to appreciate the supportive environment again.
Michiko had a look at my arm to start and suggested I try to get to see one of the physios who work at the hospital in their other clinics since they are only in a few days a week. We then discussed the optional mastectomy (possibility of an immediate reconstruction or the expander process if not, symmetry issues, recovery) and the oopherectomy (possible impacts on how I'm currently going through menopause, surgery scheduling as a different surgeon would be responsible, recovery). I have my questions now for Dr. Andrew and Dr. Fran as well as another doctor to meet regarding my ovaries. The fun never stops.
Michi called in Kerry, another nurse, who had a look at my arm and the little hard lump I found yesterday. They agreed that it would be better for me to see so done sooner rather than later and managed to get me an 8.30a appointment tomorrow with Dr. Theresa, who is the person who I saw before my trip for my compression sleeve and glove. I'm feeling apprehensive and relieved to think I'll have information and a treatment plan tomorrow.
Sunday 10 August 2014
Day 335: Heavy and blue
When I woke up my arm was exactly the same. I know it's silly but I keep hoping that I will wake up one day and it will be back to normal. It's not only the treatment I dread but also the fact that I have this condition for the rest of my life. Then there's the bit that the nurse told me today when I rang hospital after feeling a hard lump in my arm: the swelling may never go down. Egad!
It seems strange that I was able to get through all my tests, surgery and treatment and remain positive while I am struggling to do so in the face of lymphoedema. I did struggle with my hip osteoarthritis until I had my replacement. I think it may be that the things that limit my mobility are the ones I find most distressing, especially if there is no cure.
I'm hoping I'll feel better once I get an actual diagnosis on Thursday and a treatment plan. I also meet with Dr. Andrew immediately following my physio appointment to discuss my next surgical steps (exchanging my expander for a proper implant, lifting my right breast or possibly removing it and possibly taking out my ovaries). Information is good.
It seems strange that I was able to get through all my tests, surgery and treatment and remain positive while I am struggling to do so in the face of lymphoedema. I did struggle with my hip osteoarthritis until I had my replacement. I think it may be that the things that limit my mobility are the ones I find most distressing, especially if there is no cure.
I'm hoping I'll feel better once I get an actual diagnosis on Thursday and a treatment plan. I also meet with Dr. Andrew immediately following my physio appointment to discuss my next surgical steps (exchanging my expander for a proper implant, lifting my right breast or possibly removing it and possibly taking out my ovaries). Information is good.
Day 330: Dreaded lymphoedema
It's Monday and, after another night of continued arm swelling, it has become clear that I have contracted lymphoedema. After the removal of 25 of my lymph nodes and then radiotherapy, I was at risk of getting it, though the odds were fairly low. I did all I could to prevent it, but it seems that my number is up again.
I talked to Michiko, one of the Breast Care nurses, about what I should do. She pointed me to the physio who had fitted my compression sleeve. The earliest appointment I could get is for Thursday the 14th. So I will pass the time exercising and doing my specific exercises in the hopes that the swelling will go down.
Remie's defiance seems to have increased upon our return. I hope it passes soon as Alex is taking the brunt of her frustrations in the form of her hitting and scratching him.
I talked to Michiko, one of the Breast Care nurses, about what I should do. She pointed me to the physio who had fitted my compression sleeve. The earliest appointment I could get is for Thursday the 14th. So I will pass the time exercising and doing my specific exercises in the hopes that the swelling will go down.
Remie's defiance seems to have increased upon our return. I hope it passes soon as Alex is taking the brunt of her frustrations in the form of her hitting and scratching him.
Day 329: Home - and arm swelling
We arrived in at 6.35a on August 1st. The flight was sleep-filled (at least 8 hours for all) and uneventful. We collected our 6+ bags (!) and jumped in a maxi taxi. Home was warm (thanks to Rosalie for turning on the heat) and inviting. After a sleep from 10-12p, the kids were in good form. Alex spent the afternoon at Tom's party while Remie enjoyed being home. Nick and I unpacked and settled in.
Unfortunately the swelling in my arm increased as a result of the flight. I wore my sleeve for a few hours after landing to hopefully mitigate the effects of the pressurised cabin. My arm felt heavy and a bit tight but more uncomfortable than painful.
It was an early night for all, with me turning off the light at 8.30p. The time had come to catch up on 7 weeks of little sleep.
Unfortunately the swelling in my arm increased as a result of the flight. I wore my sleeve for a few hours after landing to hopefully mitigate the effects of the pressurised cabin. My arm felt heavy and a bit tight but more uncomfortable than painful.
It was an early night for all, with me turning off the light at 8.30p. The time had come to catch up on 7 weeks of little sleep.
Days 292-4:Team Pageau-Gibbs in Boston
18-20th June
Alex and I headed back into Boston on Wednesday the 18th. We caught up with Julie at the Christian Science Center where Alex beat the heat running through the fountains. Julie then showed us the delightful Mapparium which I had never even heard about despite living in the city for 3 years.
When we got to the apartment we had in the South End as home base for our adventures we found out Nick and Remie were going to take a red-eye from SF after their unscheduled stop over in Honolulu. What a disaster. Alex and I had an early night knowing that we'd be up early.
When Nick and Remie arrived, we went out for an early breakfast. They then went to sleep for 3 hours while Alex and I walked out to the Charles. Once all were awake we jumped on a Duck Tour. We had a lovely family dinner around the corner from the apartment (and just down the street from where I lived out of college).
Friday was action-packed with a visit to Quincy Market, a harbor boat tour and lunch in Cambridge with Laura and Dan. We finished it off with dinner with V and Paul, Cren and Todd and Lisa while V's daughter babysat. The reunion was a great way to end our stay.
Alex and I headed back into Boston on Wednesday the 18th. We caught up with Julie at the Christian Science Center where Alex beat the heat running through the fountains. Julie then showed us the delightful Mapparium which I had never even heard about despite living in the city for 3 years.
When we got to the apartment we had in the South End as home base for our adventures we found out Nick and Remie were going to take a red-eye from SF after their unscheduled stop over in Honolulu. What a disaster. Alex and I had an early night knowing that we'd be up early.
When Nick and Remie arrived, we went out for an early breakfast. They then went to sleep for 3 hours while Alex and I walked out to the Charles. Once all were awake we jumped on a Duck Tour. We had a lovely family dinner around the corner from the apartment (and just down the street from where I lived out of college).
Friday was action-packed with a visit to Quincy Market, a harbor boat tour and lunch in Cambridge with Laura and Dan. We finished it off with dinner with V and Paul, Cren and Todd and Lisa while V's daughter babysat. The reunion was a great way to end our stay.
Saturday 9 August 2014
Week 41: 30th high school reunion and family visit
(11-17th June)
I'm writing this nearly 2 months after the actual event simply to chronicle the journey. Alex and I had an uneventful trip to Boston during which I begrudgingly wore my compression sleeve. We had 2 nights at the Millennium Bostonian Hotel, right across the street from Faneuil Hall. We wandered the market and walked around the North End. It was in this Italian neighbourhood that I got the only decent coffee I had the whole trip. Annie came in from Chicago with her girls, ages 10 and 12, and stayed in the room next door for a night. Alex and I were quite jet lagged but had a great time nonetheless.
My Andover 30th reunion was amazing. It was great to be on campus and see how it's developed. I even went to the Peabody Archeology Museum for the first time ever, wrangling a golf cart ride with Julie and her husband, Jack. I hung out with Lisa, Annie, Cren, Tess and Julie for the most part and got to catch up with Celia, Perry, Betsy, Charlie and Paul. It felt so great to touch base with these people at this point in time.
Alex enjoyed his time on campus as well as time with my mother, sister and nephew. We also saw Aunt Claire and Uncle George, my friend from Kindy, Dawn, and her daughter Carly, and Maegan. Again, it was just nice to be in the fold on family and old friends.
I'm writing this nearly 2 months after the actual event simply to chronicle the journey. Alex and I had an uneventful trip to Boston during which I begrudgingly wore my compression sleeve. We had 2 nights at the Millennium Bostonian Hotel, right across the street from Faneuil Hall. We wandered the market and walked around the North End. It was in this Italian neighbourhood that I got the only decent coffee I had the whole trip. Annie came in from Chicago with her girls, ages 10 and 12, and stayed in the room next door for a night. Alex and I were quite jet lagged but had a great time nonetheless.
My Andover 30th reunion was amazing. It was great to be on campus and see how it's developed. I even went to the Peabody Archeology Museum for the first time ever, wrangling a golf cart ride with Julie and her husband, Jack. I hung out with Lisa, Annie, Cren, Tess and Julie for the most part and got to catch up with Celia, Perry, Betsy, Charlie and Paul. It felt so great to touch base with these people at this point in time.
Alex enjoyed his time on campus as well as time with my mother, sister and nephew. We also saw Aunt Claire and Uncle George, my friend from Kindy, Dawn, and her daughter Carly, and Maegan. Again, it was just nice to be in the fold on family and old friends.
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